So, the family is hanging in the sun room of the west wing, 9th floor. T, A & J are quiety enjoying the second season of Rescue Me, courtesy of Sven and West Stockbridge (say it loud and say it proud) Video. We've just been hangin' for the past few hours, after getting caught up with Tim and re-decorating his room. The Hotchkiss Mobile had to be carefully re-positioned to allow the ceiling mounted hoist it's full range of movement. Amy carefully hung a wonderful collage of photos featuring MMRHS friends that we delivered from Regina. We talked a bit about what's going on at home and reviewed the past few days at Spaulding. Nothing new, but we got a few new terms. Tim's muscles are now categorized as grade 2 (no resistance) and grade 3 (showing resistance to gravity). He is working to improve to grade 4, which is resistance to some weight. Grade 5 is where he was before the accident. So, that's what he's working towards.
Improvement news is that his abs are strengthening and he can pull his body forward when he is sittin in his chair.
We also learned that his new Berkshire neighbor is Dee Agar, of Mt. Everett HS. He was in a car accident shortly after Tim arrived at BMC, and they apparently were in CCU together for a bit. We did not meet them while we were there, I think we were too focused on Tim. We'll look forward to meeting Dee, his family and friends out here.
One of the benefits of being in the West Wing is nice sunsets! Good night.
Saturday, August 4, 2007
HI!
Hi Tim!
Well after many attempts I have figured out how to write on your Blog! Well first off I miss you so much I think about you 100 times a day. So I started a list of things that we are going to do once you are home. So far some of the things are explore the cave you found, swimming at the black hole, drive in movies, go to sneaky peaks dance club, just to name a few. I know that you must be very pumped about all this.
My Dad, Mom, Dustin, and Nadia all send love. Last time I talked to Nadia on the phone she said she has to go and see you in Boston, because she thinks you hate her. “I think Tim hates me or he thinks I hate him so I have to go and see him and tell him I love him and I never hated him” haha
Well that is about it. I am going to come on Monday and see you as long as your mom and dad say that is ok. Oh yeah, I just added blueberry picking to our "to do list" because I went with my mom the other day we got 11 pounds and no joke I ate them all!
OK I love you TIM!!!!
Brigitte
Well after many attempts I have figured out how to write on your Blog! Well first off I miss you so much I think about you 100 times a day. So I started a list of things that we are going to do once you are home. So far some of the things are explore the cave you found, swimming at the black hole, drive in movies, go to sneaky peaks dance club, just to name a few. I know that you must be very pumped about all this.
My Dad, Mom, Dustin, and Nadia all send love. Last time I talked to Nadia on the phone she said she has to go and see you in Boston, because she thinks you hate her. “I think Tim hates me or he thinks I hate him so I have to go and see him and tell him I love him and I never hated him” haha
Well that is about it. I am going to come on Monday and see you as long as your mom and dad say that is ok. Oh yeah, I just added blueberry picking to our "to do list" because I went with my mom the other day we got 11 pounds and no joke I ate them all!
OK I love you TIM!!!!
Brigitte
A quick hello (from someone who knows the road from Boston to the Berkshires pretty well)
Tim,
Hope this post finds you well and enjoying the (rationed) goodies that have been delivered from the Berkshires. The reports from your Dad have us all smiling back home. We've heard how strong you've been and continue to be. I can't say loudly and strongly enough how much of an example your are to all of us. Your courage and determination remind all of us just how strong the human spirit is and how luck we all are to have what we have.
I won't hold it against you that you moved into the neighborhood without telling me (if I didn't have such a horrible slice, I could probably hit Spaulding from the State House with a solid 3 Iron, but thats a big IF). So, if you are told you have a random, balding, young visitor, you'll know who it is.
Keep up that incredible spirit. I know when my family went through a tough time, it was the ability of all of us to pull together, to smile through the tears, and laugh, every once in a while, in spite of it all. You're a lucky kid to have such great parents, such great friends, and a community thats pulling for you. But more importantly, we're lucky and blessed to have someone like you in our lives. Keep working and we'll keep praying, and save me some of those goodies. James Taylor makes the turnpike from the Berkshires to Boston sound romantic, but there's only so many times you can eat at Burger King or D'Angelos.
Sincerely,
Ben
"Every once in a while you get shown the light, in the strangest of places if you look at it right"
Hope this post finds you well and enjoying the (rationed) goodies that have been delivered from the Berkshires. The reports from your Dad have us all smiling back home. We've heard how strong you've been and continue to be. I can't say loudly and strongly enough how much of an example your are to all of us. Your courage and determination remind all of us just how strong the human spirit is and how luck we all are to have what we have.
I won't hold it against you that you moved into the neighborhood without telling me (if I didn't have such a horrible slice, I could probably hit Spaulding from the State House with a solid 3 Iron, but thats a big IF). So, if you are told you have a random, balding, young visitor, you'll know who it is.
Keep up that incredible spirit. I know when my family went through a tough time, it was the ability of all of us to pull together, to smile through the tears, and laugh, every once in a while, in spite of it all. You're a lucky kid to have such great parents, such great friends, and a community thats pulling for you. But more importantly, we're lucky and blessed to have someone like you in our lives. Keep working and we'll keep praying, and save me some of those goodies. James Taylor makes the turnpike from the Berkshires to Boston sound romantic, but there's only so many times you can eat at Burger King or D'Angelos.
Sincerely,
Ben
"Every once in a while you get shown the light, in the strangest of places if you look at it right"
Friday, August 3, 2007
Our bags are packed, we're ready to go
We got a call from Uncle John today around 6PM. He had a nice visit with Tim - was very positive about his future. Seems he has a vision and a plan. Hmmm. He seems to have a good handle on the technologies available to him and he plans to use whatever he needs. John says that the movement in his arms is much more controlled and intentional than earlier.
After a delicious dinner of fried chicken and garlic mashed, courtesy of sister/chef Kate, we spoke with Tim. He sounds good. He had another session on the bike and next week he'll be doing two sessions on the bike and and two sessions on the LOCOMATOR!!!! Some concerns last night - his spasm medication (you might recall he suffered those back at BMC) was reduced, but apparently prematurely as he had another episode. This morning, the medication was put back at the same level and all is OK. Tim got a nice care package today from our neighbors Sheila and Randy today and he enjoyed the treats, but is rationing them carefully!
Amy, Jancy and I are packed and ready to go back to Boston tomorrow, with some treats and greetings for Timmy. Today was a busy day, though. This morning, while I was getting my Cheerios ready I was pleasantly surprised to see Tina come up to the back door with a leash to take ol' Sambone for a walk - no one is forgotten. Mid-morning, Amy met with some representatives of the insurance company (who have all been very helpful and available to us) to review how our 1850's country home might be made accessible for Tim. Interesting, but do-able is the word (more on that after we get a report). Later in the day, Amy was able to solve a mystery. Seems as though someone sent pizza to the 9th floor for the staff on Monday night after Amy went home. The staff couldn't figure it out and we couldn't either. Today, we learned that it was Katie and John from (where else?) the greatest small town around - West Stockbridge! Thanks guys.
Well, next weekend is Zucchini Festival here in West Stockbridge, and the planning and preparations are at a fever pitch! We're so sorry we won't be able to help out and enjoy the day. I'm sure that Tim wishes he could strap on his waders and help catch the "Zucks" as they float downstream. Just wait 'til next year! At any rate, we'll expect someone to post a report on the day's events and highlights.
After a delicious dinner of fried chicken and garlic mashed, courtesy of sister/chef Kate, we spoke with Tim. He sounds good. He had another session on the bike and next week he'll be doing two sessions on the bike and and two sessions on the LOCOMATOR!!!! Some concerns last night - his spasm medication (you might recall he suffered those back at BMC) was reduced, but apparently prematurely as he had another episode. This morning, the medication was put back at the same level and all is OK. Tim got a nice care package today from our neighbors Sheila and Randy today and he enjoyed the treats, but is rationing them carefully!
Amy, Jancy and I are packed and ready to go back to Boston tomorrow, with some treats and greetings for Timmy. Today was a busy day, though. This morning, while I was getting my Cheerios ready I was pleasantly surprised to see Tina come up to the back door with a leash to take ol' Sambone for a walk - no one is forgotten. Mid-morning, Amy met with some representatives of the insurance company (who have all been very helpful and available to us) to review how our 1850's country home might be made accessible for Tim. Interesting, but do-able is the word (more on that after we get a report). Later in the day, Amy was able to solve a mystery. Seems as though someone sent pizza to the 9th floor for the staff on Monday night after Amy went home. The staff couldn't figure it out and we couldn't either. Today, we learned that it was Katie and John from (where else?) the greatest small town around - West Stockbridge! Thanks guys.
Well, next weekend is Zucchini Festival here in West Stockbridge, and the planning and preparations are at a fever pitch! We're so sorry we won't be able to help out and enjoy the day. I'm sure that Tim wishes he could strap on his waders and help catch the "Zucks" as they float downstream. Just wait 'til next year! At any rate, we'll expect someone to post a report on the day's events and highlights.
Hi Tim
Just a note to let you know that you are in my thoughts, and we are all wishing you the best and continued progress. Your determination and positive spirit are outstanding. If I make it home in the next few weeks to visit the family as planned, I will be by to visit and see that “buzz” cut that Paul told me about.
Love,
Joanne
Love,
Joanne
Thursday, August 2, 2007
Easy Rider
Another good day for the lad. My report came in via two phone calls. Grandpa drove up from the Cape and enjoyed a nice lunch out on the patio with Tim, who fed himself using the various tools provided to assist him. Fresh fruit salad and a nice smoothie, along with a sweet treat. Over lunch, Tim let him know about his first experience with technology. Not the Locomat yet, but sort of a recumbent bicycle was the new activity of the day. Tim sat on this bike, had his feet strapped in and the machine moved his legs in that motion. At the same time, electrodes were attached at key spots on his legs to stimulate muscle and nerve activity. Disclaimer: this is a third party re-accounting of an actual event, but does not involve any information gleaned from an actual therapist or doctor. Grandpa said that Tim was able to explain and understand the science behind it. Uncle John checked in a bit later, and reported that Tim was relaxing and in a good mood. Tim had told him that there is a new Bershires resident at Spaulding - Dean Agar. Apparently, they were at BMC together. We'll look forward to meeting him. When Amy and I called in later, he had time for just a short conversation, but was looking forward to tell us in more detail about his experience when we return this weekend.
Tim and Brendan were moved to a new wing today - Room 903. The room has a hoist permanently mounted on the ceiling, which will be helpful as both still need assistance getting out of bed. We did learn that he got a nice card from Aunt Merrilyn in NC and apparently, there is a poster from Shurika hanging on his wall to lighten things up.
Also of note - I invited our 100th person to join the blog. It's growing in leaps and bounds and I think there's a lot of connectivity to Tim and support generated through that.
Good night!
Tim and Brendan were moved to a new wing today - Room 903. The room has a hoist permanently mounted on the ceiling, which will be helpful as both still need assistance getting out of bed. We did learn that he got a nice card from Aunt Merrilyn in NC and apparently, there is a poster from Shurika hanging on his wall to lighten things up.
Also of note - I invited our 100th person to join the blog. It's growing in leaps and bounds and I think there's a lot of connectivity to Tim and support generated through that.
Good night!
HEY TIMMY
Sorry for the blogging goof the other night.....
Very simply, I just wanted to let you know that you and your fabulous progress are on our minds ALL the time...... We are moved by everything you have accomplished already and sort of have this powerful sense that you have only just begun. We are hopefully trying to visit with you on our way back from the Cape next week and can't wait to see you, so keep up the good work. We're biased of course, but those Baldwin Tees are something magical....
Love Mrs. B
Very simply, I just wanted to let you know that you and your fabulous progress are on our minds ALL the time...... We are moved by everything you have accomplished already and sort of have this powerful sense that you have only just begun. We are hopefully trying to visit with you on our way back from the Cape next week and can't wait to see you, so keep up the good work. We're biased of course, but those Baldwin Tees are something magical....
Love Mrs. B
Wednesday, August 1, 2007
Thinking of you
Hey Tim, just writing to let you know that I am thinking of you. I'm at camp but I just wrote you a letter and had all my campers sign it, so you'll be getting that soon. All of these positive words that I'm reading about your progress make me so incredibly happy and proud of you, and I know that you will continue to do so well. I will be around till late September so I want to come visit you, if that's okay. Anyway, keep up the great work and remember: B-20, ONLY LOVE.
-Elyse
-Elyse
Give a man a fish and feed him for a day. Teach him to fish and feed him for life
Well, Amy returned today to the Beautiful Berkshires via bus into Lee, where I picked her up. We're tired. How wonderful to arrive home to a delicious meal delivered by friends Janie & Steve, some nice conversation and a review of the day.
I had already heard, via email from Uncle John, that Tim was asleep at 4:00! Amy confirmed that the new schedule did him in, and he was out like a light by 2:00 actually. Tim was outfitted with some new tools for eating today, and his abililities were increased to the point that he was actually able to eat a grape with a fork. I think I'm gonna git me one of those! He is now feeding himself more easily, and enjoyed a nice lunch with Mom on the patio.
Back to the early bed-time, Tim had his butt kicked by a full day of therapy, pretty much the same stuff, but now 4 hours of it, so he was ready to conk out.
He had a nice visit today from an Angel - Angie Snow and husband Fred, son Ryan stopped by with a nice gift bag including Red Sox attire. It was a nice opportunity for Amy to spend some time with long time friends and Tim is very excited to support the Hose while watching the games on TV.
Steady communication from the community keep Tim's spirits up, and support Amy and me, too! Today's mail included a handwritten two page letter from Uncle Chris that left Tim deeply moved; a care package from the (hardware) Baldwins that had too many goofy gifts to mention made Tim smile - and included a Baldwin Hardware West Stockbridge (rocks), MA tee and a Beatles poster which is now brightening the room; a package from cousin Melanie included gifts chosen by her young children Cameron and Sophie - a disco ball (how did they know?) and a Magic 8 ball (more smiles). Brian's cousin Paul stopped by again and we learned that Grandma's cousin Bob and his son Mark cruised in from Swellesley on Tuesday night. The emails, Facebook posts and phone calls are too numerous to mention. We are very grateful for all of it.
We called Tim tonight at around 8:00 and found him awake and in a good mood. The good news is that the nurses had him hold the phone himself (first time) but the bad news was that the nurses had him hold the phone himself. Tim learned a new limit as that simple action tired out his arm quickly, he was able to switch hands but we had to have a quick conversation. He did confirm that he got a haircut today, but not the Mohawk that he had originally indicated. Just a buzz. I look forward to that, because there's less hair hiding his handsome face!
I had already heard, via email from Uncle John, that Tim was asleep at 4:00! Amy confirmed that the new schedule did him in, and he was out like a light by 2:00 actually. Tim was outfitted with some new tools for eating today, and his abililities were increased to the point that he was actually able to eat a grape with a fork. I think I'm gonna git me one of those! He is now feeding himself more easily, and enjoyed a nice lunch with Mom on the patio.
Back to the early bed-time, Tim had his butt kicked by a full day of therapy, pretty much the same stuff, but now 4 hours of it, so he was ready to conk out.
He had a nice visit today from an Angel - Angie Snow and husband Fred, son Ryan stopped by with a nice gift bag including Red Sox attire. It was a nice opportunity for Amy to spend some time with long time friends and Tim is very excited to support the Hose while watching the games on TV.
Steady communication from the community keep Tim's spirits up, and support Amy and me, too! Today's mail included a handwritten two page letter from Uncle Chris that left Tim deeply moved; a care package from the (hardware) Baldwins that had too many goofy gifts to mention made Tim smile - and included a Baldwin Hardware West Stockbridge (rocks), MA tee and a Beatles poster which is now brightening the room; a package from cousin Melanie included gifts chosen by her young children Cameron and Sophie - a disco ball (how did they know?) and a Magic 8 ball (more smiles). Brian's cousin Paul stopped by again and we learned that Grandma's cousin Bob and his son Mark cruised in from Swellesley on Tuesday night. The emails, Facebook posts and phone calls are too numerous to mention. We are very grateful for all of it.
We called Tim tonight at around 8:00 and found him awake and in a good mood. The good news is that the nurses had him hold the phone himself (first time) but the bad news was that the nurses had him hold the phone himself. Tim learned a new limit as that simple action tired out his arm quickly, he was able to switch hands but we had to have a quick conversation. He did confirm that he got a haircut today, but not the Mohawk that he had originally indicated. Just a buzz. I look forward to that, because there's less hair hiding his handsome face!
At the edge
Hi, Tim. It has been amazing to read your father's wonderful posts about you and your family and Spaulding and especially about how you are doing. I can't wait to read tonight's post. I gather the work is going to get more demanding as you begin to be more upright and begin relearning to walk. I looked up on the web about the new contraption that will help you walk. It seems totally awesome. I look forward to seeing you on it! I am sure you are totally psyched to give it your all and then some. I know you will do amazingly well.
I was working out myself yesterday at just at the edge where I was most challenged and really had to dig to make the next move, I thought of you and sent you all my love and all my effort and all my intensity.
I love you, Tim.
Phoebe
I was working out myself yesterday at just at the edge where I was most challenged and really had to dig to make the next move, I thought of you and sent you all my love and all my effort and all my intensity.
I love you, Tim.
Phoebe
Greetings from #3 Stockbridge Road.....Tim, we think about you every day! It's hard not to when I look at your bedroom window every night as I shut my drapes and every morning when I open them. So it is safe to say you are the last person on my mind every night as I try to get to sleep. We have been keeping up with you through the West Stockbridge grape vine and when we heard the news of how amazingly well you are doing, I had to write and tell you how proud of you we all are and to let you know that we are sending you lots of love everyday! I must also let you know that your lawn has been mowed more in the last three weeks than it has in the past three months... We miss you and can't wait to see you back in the Berkshires.
Tuesday, July 31, 2007
Thinking of you Tim!!!
Hello Tim! You've been on my mind a lot lately and I am so grateful for this blog to keep posted on everything without having to bother your mom and dad too much! I am so encouraged to hear about all the progress you are making at Spaulding. I am grateful that you were able to go to such a wonderful place. I am also glad that I will be able to come see you in Boston soon when I am on vacation. I lived in the Boston area for 7 years before moving out to Albany and I miss it a lot sometimes.
I was over at the church today and on the altar table there was a picture of you standing in a tux in front of a car. Someone has been praying for you. Lots of people have been praying for you. I don't know what that means to you, but take all that spiritual energy and somehow let it in. We're all pulling for you and we are all confident that you will find wholeness and happiness whatever may be. We admire your strength, courage and ability to keep upbeat and hope you will call upon all the prayers and hopes for you on days when it is hard to keep it up. More and more blessings to you Tim and to your family.
Shawn
I was over at the church today and on the altar table there was a picture of you standing in a tux in front of a car. Someone has been praying for you. Lots of people have been praying for you. I don't know what that means to you, but take all that spiritual energy and somehow let it in. We're all pulling for you and we are all confident that you will find wholeness and happiness whatever may be. We admire your strength, courage and ability to keep upbeat and hope you will call upon all the prayers and hopes for you on days when it is hard to keep it up. More and more blessings to you Tim and to your family.
Shawn
On the Outside, Looking In
So today is the first day that I'm home with Amy remaining in Boston, and it's a little weird. However, I am so swamped with work that the day just flew by. Have I mentioned that Murphy's Law is in effect, and that I am trying to fill two positions on my staff at the same time? Life comes at you, eh?
I had an earlier conversation with Tim, and he sounded great. Sure he missed me, but today was a great day for visitors - two sets from the Berkshires kept him in good spirits all day. In fact he was having so much fun, he forgot to attend a group PT session for arm strength. Today's cast of characters included Bridget, Jacob and Maddie followed later by Tyler, Matt, Nathan and Samantha. Tim is already scheming with Tyler about what he'll do when he finishes up at Spaulding, and I'm pleased to report that he wants to purchase a motorcycle and take a road trip out to the west coast. Tyler's on board, so I guess it's a go! Alrighty, then.
A few minor things today. He wheeled himself to the Dunkin' Donuts in the lobby and used a gift card to purchase a refreshing beverage (hint: Dunkin' Donuts Gift Cards might be a good thing to send or bring him) and take it with him. He is evaluating different beverage containers as to their portability. When I talked with him, he was watching the Sox, and he is becoming a knowledgeable fan - Fred, when you visit, test him a bit.
Later when I checked in with Amy, I learned that in OT, he got a neck massage and learned that he should spend a little more time reclined so that his neck won't get so sore. Also worked some more on moving objects around. PT was a lot of arm work and holding himself up in a sitting position and leaning forward. Tim was put on a blood pressure medication to begin to prepare for the Locomat.
Amy spent some good quality time with Dr. O'Connor and continues to be impressed with his manner and level of caring. She also started to learn a little more about benefits that might be available for Tim as we start to plan ahead for the time when he comes home.
Tomorrow is an incredibly full day for Tim - I guess the first week or so was just a warm up. He'll now get started at 8AM, with stretching at 9 and then 4 therapy sessions and a group lunch social session. I think that now, more than ever, it makes sense to call before visiting.
I had an earlier conversation with Tim, and he sounded great. Sure he missed me, but today was a great day for visitors - two sets from the Berkshires kept him in good spirits all day. In fact he was having so much fun, he forgot to attend a group PT session for arm strength. Today's cast of characters included Bridget, Jacob and Maddie followed later by Tyler, Matt, Nathan and Samantha. Tim is already scheming with Tyler about what he'll do when he finishes up at Spaulding, and I'm pleased to report that he wants to purchase a motorcycle and take a road trip out to the west coast. Tyler's on board, so I guess it's a go! Alrighty, then.
A few minor things today. He wheeled himself to the Dunkin' Donuts in the lobby and used a gift card to purchase a refreshing beverage (hint: Dunkin' Donuts Gift Cards might be a good thing to send or bring him) and take it with him. He is evaluating different beverage containers as to their portability. When I talked with him, he was watching the Sox, and he is becoming a knowledgeable fan - Fred, when you visit, test him a bit.
Later when I checked in with Amy, I learned that in OT, he got a neck massage and learned that he should spend a little more time reclined so that his neck won't get so sore. Also worked some more on moving objects around. PT was a lot of arm work and holding himself up in a sitting position and leaning forward. Tim was put on a blood pressure medication to begin to prepare for the Locomat.
Amy spent some good quality time with Dr. O'Connor and continues to be impressed with his manner and level of caring. She also started to learn a little more about benefits that might be available for Tim as we start to plan ahead for the time when he comes home.
Tomorrow is an incredibly full day for Tim - I guess the first week or so was just a warm up. He'll now get started at 8AM, with stretching at 9 and then 4 therapy sessions and a group lunch social session. I think that now, more than ever, it makes sense to call before visiting.
Thoughts from Tanglewood
Hi Tim-
My name is Eva and I used to work with your Dad at The Red Lion Inn. He used to share some pretty funny stories about you and Jancy...anyway, I was at Tanglewood this week for probably my only visit this year when I heard you had moved some toes!!! As I sat their on the lawn, listening to an all Mozart program, watching my daughters run around the lawn, I thought of you and the incredible love and strength that I know (and I read on the Blog) you are feeling every moment from your family and friends. WHAT AN ACCOMPLISHMENT!!! You should be so psyched for yourself for such an awesome achievement. I know there is more work to do, but it all builds from the foundation of the little things. Remember that the only way to influence your outcome(whatever your goal is) is by focussing on the things you have the power to control, and you have the power to make your choices when you respond to life's events. Stay well, stay strong, and thanks for the Blog.
My name is Eva and I used to work with your Dad at The Red Lion Inn. He used to share some pretty funny stories about you and Jancy...anyway, I was at Tanglewood this week for probably my only visit this year when I heard you had moved some toes!!! As I sat their on the lawn, listening to an all Mozart program, watching my daughters run around the lawn, I thought of you and the incredible love and strength that I know (and I read on the Blog) you are feeling every moment from your family and friends. WHAT AN ACCOMPLISHMENT!!! You should be so psyched for yourself for such an awesome achievement. I know there is more work to do, but it all builds from the foundation of the little things. Remember that the only way to influence your outcome(whatever your goal is) is by focussing on the things you have the power to control, and you have the power to make your choices when you respond to life's events. Stay well, stay strong, and thanks for the Blog.
C'Mon Baby Do the LOCOMATION
More excellent news!!! Good luck this week. You are making such amazing progress. Everyone here in England says: You're brilliant. Well-done! Horrahhh. Keep it up, Tim!!! Has Gabby's cd for you arrived yet? She made you a cd with new tunes from all the English bands you love to watch in person in Hyde Park. Now, there's something to help you do the LOCOMATION!!!
Love, Aunt Carolann
Monday, July 30, 2007
TIM!
TIM! Dude, my parents came to camp the other day and told me about the major improvements you've been making. It was seriously the best news I've heard in a long time. I am so excited and happy for you and know that even though the road ahead may be long and bumpy at times there is no one more primed for this fight. annnnyway, all the camp kids anxiously await updates and we are all thinking of you often. i have a bunch more things to send you (did you get the first couple of letters? i sent them to BMC..my b) but now I have your address so that's word. Tim when you come home I promise you can come to dinner with my family at the village oven anytime you want without intruding. I promise. I hope Boston is cool, and now that you have your sick ride I'm sure you're seeing alot of it. Maybe this wheelchair doesn't have a built in carphone but that's okay.
I hope you see you soon if you'll take me barging into your room? Till then keep improving dude, I can't wait to hear how well you're doing.
-Jess
I hope you see you soon if you'll take me barging into your room? Till then keep improving dude, I can't wait to hear how well you're doing.
-Jess
I Don't Like Mondays - NOT!!
We arrived pretty early today, eager to talk to Drs. O'Connor and LeRoy. We met with them right after their morning visit with Tim, and we heard encouraging things. Tim is now actually able to wiggle several other toes on the left foot, and his triceps are "coming along." I asked what he meant last week when he said "this (leg movement) changes everything," and heard exactly what I had hoped to hear. Now, instead of focusing on rehab to prepare Tim to be independent with the use of a chair and other adaptive technologies, they will concurrently work on developing his walking. Wow.
First thing he has to do, is regain the ability to stand without getting dizzy - another result of low blood pressure. The exercise for that is the Tilt Table, which "stands him up" and puts some pressure on his legs. He's used that before, but the dizzyness was a bit of an issue. If he can't overcome that naturally, they are considering a blood pressure medication. Once he can handle that, Tim will make use of the "Locomat" - for those of you following closely (pre-blog), this is the machine featured in the NYTimes Science section on July 10, and pointed out to us by Drs. Kantrowitz and Crowell back at BMC. The article really got Tim pumped up in Pittsfield, and had the same effect today.
"Locomotion therapy supported by an automated gait orthosis on a treadmill has established itself as an effective intervention for improving over-ground walking function caused by neurological diseases and injuries." More on this including pictures at http://www.hocoma.ch/web/en/products/introduction_lokomat.html We went down to the 7th floor immediately and got a demo from a technician. We're looking forward to a mid-week start.
Tim had an exhausting PT session this morning, is resting now, and will start OT at 2:00. G&G are arriving this afternoon for a visit, because Grandma just couldn't wait til Thursday. Brian heads home this evening.
Completing this entry now from home at One Stockbridge Road. Discovered that while I was driving home, Tim, Jancy and Amy had a Dennis Leary marathon courtesy of West Stockbridge Video (thanks Sven!) and watched the second season (or something) of Rescue Me. Amy says that Tim was in high spirits, and that's a good thing.
Back to work in the morning for me!
First thing he has to do, is regain the ability to stand without getting dizzy - another result of low blood pressure. The exercise for that is the Tilt Table, which "stands him up" and puts some pressure on his legs. He's used that before, but the dizzyness was a bit of an issue. If he can't overcome that naturally, they are considering a blood pressure medication. Once he can handle that, Tim will make use of the "Locomat" - for those of you following closely (pre-blog), this is the machine featured in the NYTimes Science section on July 10, and pointed out to us by Drs. Kantrowitz and Crowell back at BMC. The article really got Tim pumped up in Pittsfield, and had the same effect today.
"Locomotion therapy supported by an automated gait orthosis on a treadmill has established itself as an effective intervention for improving over-ground walking function caused by neurological diseases and injuries." More on this including pictures at http://www.hocoma.ch/web/en/products/introduction_lokomat.html We went down to the 7th floor immediately and got a demo from a technician. We're looking forward to a mid-week start.
Tim had an exhausting PT session this morning, is resting now, and will start OT at 2:00. G&G are arriving this afternoon for a visit, because Grandma just couldn't wait til Thursday. Brian heads home this evening.
Completing this entry now from home at One Stockbridge Road. Discovered that while I was driving home, Tim, Jancy and Amy had a Dennis Leary marathon courtesy of West Stockbridge Video (thanks Sven!) and watched the second season (or something) of Rescue Me. Amy says that Tim was in high spirits, and that's a good thing.
Back to work in the morning for me!
to Tim & family
Tim-
I just want you to know that your old ( and I mean dinosaur old) teachers at BCD are sending much love and positive energy. I know how hard you're working, how much effort you're putting forth, and also how many wonderful loving people are behind your every effort.
Your blog is terrific, a wonderful way to let you and your family know how many people are out there for you, without being a pest.
I'm thinking of you all today and everyday.
Katharine Bambery
I just want you to know that your old ( and I mean dinosaur old) teachers at BCD are sending much love and positive energy. I know how hard you're working, how much effort you're putting forth, and also how many wonderful loving people are behind your every effort.
Your blog is terrific, a wonderful way to let you and your family know how many people are out there for you, without being a pest.
I'm thinking of you all today and everyday.
Katharine Bambery
family matters
Tim, oh powerful one, in your motorized throne at spaulding. You have already accomplished so much, both within and without the hospital walls. There is an entire community of FOT's (friends of Tim), some of whom you may not even know! Your Berkshire family, I guess I need to be more specific, because everyone here is now part of your Berkshire family, so the Kapteyn family is more united than ever, thinking about you, your Mom and Dad, and Jancy (that vegetarian sister of yours), and doing whatever we can think of to send positive thoughts your way. I do want to clarify that I had nothing to do with the cleaning episode, let's be real here. In fact I very happily got dirty on your account. I just want you to know that you are very much here in our thoughts and conversations. And it's all good. Hope to see you soon.
much love, (dirty) Aunt Molly
much love, (dirty) Aunt Molly
Oh, Such a perfect Day
Very happy to hear that you are carving out some down time and treating yourselves to some well-deserved creature comforts - pinot grigio, MickyDees, sundowners and views! All that AND! a spic and span house behind you. All of you deserve every deep breath you managed to cram in!!! This is definitely a Sabbath-habit to continue. Lots of love, ca
Sunday, July 29, 2007
Sabbath Reflections
In my religion and at Spaulding Rehabilitation Hospital, Sunday is a day of rest. So, we got a relaxed start to the day, and walked down via Charles Street and sort of along the Storrow Drive with the River and Esplanade on our left (along with 4 - 6 lanes of asphalt and a couple of construction zones, but we'll forget about that for now). We basically just hung out with Tim today. He was pretty whupped. Later in the morning, I escorted Jancy Bean to South Station, where she caught a train home. I walked back through the financial district and along Quincy Market, which took just about 25 minutes. Not a bad temperature out, so it was OK. Along the way, per Tim's request I picked up some to-go from renowned restauranter Ronald McDonald and the three of us enjoyed some fine cuisine and conversation on the patio.
The afternoon ambled along - I actually went down to the cafeteria, found a quiet spot and paid my bills - about a week and half late. Good to get that out of the way. When I got upstairs, I was greeted by former West Stockbridge resident Janie Goldenberg and Steve Albert (he's the fellow who got this blog thing up and running, you may recall), currently of Egremont. They were ostensibly in town to visit the Edward Hopper exhibit at MFA, but I think that was a smokescreen put up by Janie, who really wanted to spend some time with Tim. We were having a nice visit and were soon joined by Bershire Bob and Marge Powell along with Jacquay Moffatt, who were definitely in town to attend the Police concert at Fenway. West Stocbridge Rocks!! Tim, as always, was a great visitee and we all had a swell time. He started fading at around 5:00 and we began to get him ready for bed. He wanted to get a good night sleep, after eating three full meals so he could get back into the rehab thing full-tilt in the morning.
By 6:30 or so, Amy and I were out of there and Tim was on his way to Dreamland. We walked back the same way and stopped in a Charles Street packy (it had a nice name, I'm sure) and picked up a couple of bottles or Pinot - Grigio and Noir. At the apartment, we threw open the bay windows, poured a glass of wine, put together a lite dinner, turned on blues night on WBOS and sat in front of that bay window and proceeded to watch the sun go down and the lights come on over Beacon Hill, Back Bay, the Charles River, Kenmore Square and Cambridge (our fair city), MA. This was our first real down time, alone, since July 12.
I'm only telling you this because we spent a decent amount of time reflecting on all the generosity that has been extended to Tim and to his family. If you can't tell by the description above, this apartment is much more than a place to lay our heads, and will be a huge part of keeping our health and focus over the next weeks and months. The visitors keep coming in, as do the posts, emails, cards and letters to keep all of us energized and looking ahead. Back at home, the dog is getting fed, the lawn is getting mowed, Jancy is being watched over, our employers are understanding and the folks in the sales offices at The Red Lion Inn & Porches and in the assessors office in West Stockbridge are making sure that things keep moving forward. We are also reminded that Amy is from a very tight and loving family. Next time you drive by One Stockbridge Road, you might notice some new and beautiful landscaping out in front of the house. Not so noticeable, but equally awesome, you'd find - newly installed ground cover and woody plants along our embankment that Amy had bought just a few days before July 12; a spic and span house, including sparkling clean windows and the notable absence of one old aluminum row boat that Tim pulled out of the Housatonic a while ago to "fix up." While we were briefly home, we had some nice quiet moments and good food together with the same folks who did all that. Thanks (doesn't really convey it) to Peter, Sarah, Molly, Lou, Chris, Phoebe, Katie and Art (special thanks to John, Brenda and Roselle, and if I am missing anyone, I'm sorry).
Well, that's it for now. Jancy is at home cooking up plans to bring some more VIP country folk down the pike for a nice visit tomorrow. Our old Boston friends from the day returned home from vacation and we expect to be seeing a few of them this week.
The afternoon ambled along - I actually went down to the cafeteria, found a quiet spot and paid my bills - about a week and half late. Good to get that out of the way. When I got upstairs, I was greeted by former West Stockbridge resident Janie Goldenberg and Steve Albert (he's the fellow who got this blog thing up and running, you may recall), currently of Egremont. They were ostensibly in town to visit the Edward Hopper exhibit at MFA, but I think that was a smokescreen put up by Janie, who really wanted to spend some time with Tim. We were having a nice visit and were soon joined by Bershire Bob and Marge Powell along with Jacquay Moffatt, who were definitely in town to attend the Police concert at Fenway. West Stocbridge Rocks!! Tim, as always, was a great visitee and we all had a swell time. He started fading at around 5:00 and we began to get him ready for bed. He wanted to get a good night sleep, after eating three full meals so he could get back into the rehab thing full-tilt in the morning.
By 6:30 or so, Amy and I were out of there and Tim was on his way to Dreamland. We walked back the same way and stopped in a Charles Street packy (it had a nice name, I'm sure) and picked up a couple of bottles or Pinot - Grigio and Noir. At the apartment, we threw open the bay windows, poured a glass of wine, put together a lite dinner, turned on blues night on WBOS and sat in front of that bay window and proceeded to watch the sun go down and the lights come on over Beacon Hill, Back Bay, the Charles River, Kenmore Square and Cambridge (our fair city), MA. This was our first real down time, alone, since July 12.
I'm only telling you this because we spent a decent amount of time reflecting on all the generosity that has been extended to Tim and to his family. If you can't tell by the description above, this apartment is much more than a place to lay our heads, and will be a huge part of keeping our health and focus over the next weeks and months. The visitors keep coming in, as do the posts, emails, cards and letters to keep all of us energized and looking ahead. Back at home, the dog is getting fed, the lawn is getting mowed, Jancy is being watched over, our employers are understanding and the folks in the sales offices at The Red Lion Inn & Porches and in the assessors office in West Stockbridge are making sure that things keep moving forward. We are also reminded that Amy is from a very tight and loving family. Next time you drive by One Stockbridge Road, you might notice some new and beautiful landscaping out in front of the house. Not so noticeable, but equally awesome, you'd find - newly installed ground cover and woody plants along our embankment that Amy had bought just a few days before July 12; a spic and span house, including sparkling clean windows and the notable absence of one old aluminum row boat that Tim pulled out of the Housatonic a while ago to "fix up." While we were briefly home, we had some nice quiet moments and good food together with the same folks who did all that. Thanks (doesn't really convey it) to Peter, Sarah, Molly, Lou, Chris, Phoebe, Katie and Art (special thanks to John, Brenda and Roselle, and if I am missing anyone, I'm sorry).
Well, that's it for now. Jancy is at home cooking up plans to bring some more VIP country folk down the pike for a nice visit tomorrow. Our old Boston friends from the day returned home from vacation and we expect to be seeing a few of them this week.
WOW!
Hey Tim,
I just read about your toe and thigh moving, that's incredible! Spaulding seems like a great place! I'm really proud of you, keep up the great work, you can do it!
Love, Alex
I just read about your toe and thigh moving, that's incredible! Spaulding seems like a great place! I'm really proud of you, keep up the great work, you can do it!
Love, Alex
Piggy's Ready for Market
Hey Tim
Having my morning coffee and checking in on you. It's soooooo great to hear the latest. Wiggly toe and two pound weights, WOW!!! They don't "weight" around at Spaulding, eh?! Straight on to the next level. I await further news and remain thankful and ecstatic that you are doing so well. You are working very hard, and doing amazing things. Keep it up!!! We love you lots and lots from the top of your just-washed hair to the tip of that amazing toe of yours, Aunt Carolann
Saturday, July 28, 2007
Love that Dirty Water
For those who haven't known us for so long, Boston is the town where Amy and I met and fell in love (it was the trips back home with Amy that caused me to fall in love with The Bershires) back in the 80's. We always love visiting this city, which remains comfortable to us. Last week, though, we weren't really able to enjoy the trip. Today is a different story. We arrived late afternoon and were pleased to find cousin Lily and her boyfriend Byron visiting with Tim. Lily had just returned from a trip across the US of A and was eager to catch up with Tim. A great visit. We are again fortunate to have a family member nearby to fill in the gaps when we can't be out here. Lily is a student at Mass College of Art in town, and she'll be here from now on. John and JP stopped by as well to put a nice finish on another good day at Spaulding. We got a chance to meet Tim's roommate Brandon, from Needham. He's 27 and was in a car accident on July 19 - he's about a week behind Tim. He was with his sister Karen and her husband Paul. All very nice, and gave us a chance to return some of the assistance we have received by offering guidance, etc.
The first thing we did was confirm the news we heard about movement, and it was something special to see Tim move that thigh - just a little now, but enough that the therapists can "work it" and develop it. Tims legs were wrapped (to keep his blood pressure up), so we couldn't see that toe wiggle - Tim confirms that it's the big toe on his left foot. He is pumped and is now envisioning other parts of his body moving at his direction.
PT today was back on the board that stands Tim up straight and allows the PT's to put weight on his legs and feet, to get them back in use. While in that position, Tim repeatedly fired his thigh muscles. OT was an activity to build dexterity - moving and stacking cones on a table surface. He also held and did some exercises with 2 pound weights to build strength in all parts of his arms.
A highlight of the day was a shower for Tim - he is wheeled into a shower in a special chair and really enjoyed it. Hair washed, he looks great - I'll shave him tomorrow. His scar from surgery is almost healed and practically invisible.
We wound down the day with a glass of wine at the Beacon Hill Bistro on Charles Street, just two blocks from the beautiful and comfortable apartment that has been made available to us by a wonderful friend (thank you :-) ) while Jancy enjoyed some sort of tofu concoction purchased at Whole Foods Market. Sunday is rest day at Spaulding, so we're looking forward to nothing much at all with Tim.
The first thing we did was confirm the news we heard about movement, and it was something special to see Tim move that thigh - just a little now, but enough that the therapists can "work it" and develop it. Tims legs were wrapped (to keep his blood pressure up), so we couldn't see that toe wiggle - Tim confirms that it's the big toe on his left foot. He is pumped and is now envisioning other parts of his body moving at his direction.
PT today was back on the board that stands Tim up straight and allows the PT's to put weight on his legs and feet, to get them back in use. While in that position, Tim repeatedly fired his thigh muscles. OT was an activity to build dexterity - moving and stacking cones on a table surface. He also held and did some exercises with 2 pound weights to build strength in all parts of his arms.
A highlight of the day was a shower for Tim - he is wheeled into a shower in a special chair and really enjoyed it. Hair washed, he looks great - I'll shave him tomorrow. His scar from surgery is almost healed and practically invisible.
We wound down the day with a glass of wine at the Beacon Hill Bistro on Charles Street, just two blocks from the beautiful and comfortable apartment that has been made available to us by a wonderful friend (thank you :-) ) while Jancy enjoyed some sort of tofu concoction purchased at Whole Foods Market. Sunday is rest day at Spaulding, so we're looking forward to nothing much at all with Tim.
WOW!!
Tim - Just checked in - What great news - And so much of it!!
I just love hearing about you terrorizing people in your wheel chair. Well it hasn't been put quite that way but then - I'm reading between the lines. If it doesn't have an Audi emblem on the front it should.
Keep up the good work - the great attitude and keep surprising us. ( Of course - anyone that knows you - knows that when you put your mind to something - you get it done - so "surprise" may be the wrong word.)
We will keep checking in.
Steve Foose
I just love hearing about you terrorizing people in your wheel chair. Well it hasn't been put quite that way but then - I'm reading between the lines. If it doesn't have an Audi emblem on the front it should.
Keep up the good work - the great attitude and keep surprising us. ( Of course - anyone that knows you - knows that when you put your mind to something - you get it done - so "surprise" may be the wrong word.)
We will keep checking in.
Steve Foose
OMG
Tim, Wow, that is the best news we have heard. It is a positive step and you are an inspiration to us all. Yarmo girls are all away, but periodically will be checking this blog and writing....thanks for allowing us to share the good news.....Mary and Steve
Toe the line, young man
Just a quick note - Tim called Amy this morning on Dr. O'Connor's cell to let us know that he can move a toe!
We're heading out there soon and can't wait to see all of this stuff for ourselves.
We're heading out there soon and can't wait to see all of this stuff for ourselves.
Friday, July 27, 2007
Good Friday
Today Amy had a long talk on the phone with Dr. O'Connor, and learned more details about Tim's movement in his left leg. On Thursday afternoon, and again on Friday morning, Tim was again able to move his left thigh about two inches to the right. The doctor said that this was fantastic and "changes everything" about Tim's discharge date (which had been tentatively set for September 14 - but not set in stone), implying that there would be a change in his program. Obviously we were very excited to get that clarification, but again we are cautiously optimistic and aware that this latest development is no guarantee of full recovery. Still very much one day at a time, but this was indeed a BIG day for us and for Tim.
Tim called in again this evening, courtesy of John's cell phone from the outside patio, where he enjoyed a nice supplement to his hospital diet, which John had brought down from the local Whole Food Market. Couple of bits of info - Tim has a new room mate - a boy closer in age to him, who arrived today. His name is Brendan, and that's about all we know. Tim did lose his window view and is now in room 925 C. Since he is now more mobile, that is no longer as important. In fact, he was in his chair when John arrived and was able to get himself down the elevator and out to the front porch.
In PT he learned that his movement involved three different muscles in his left leg, and worked on that a bit. OT was more strength training for his arms. His shoulder feels much better. He worked a bit more on his computer skills, but still needs some work before he feels real comfortable with it.
Brian's cousin Paul works in Boston and came by to visit on Thursday night and brought a box of Cannoli's from the North End. That delicious treat was balanced by a wonderful fruit basket that arrived courtesy of some good friends from Richmond. Thanks everyone!
Italian pastry and fresh fruit are wonderful, but Tim's big treat today was a large dose of Berkshire hospitality in the form of Bridget Redel (fresh back from Germany), Dr. Conor O'Malley, Blake Davis and Katie Grenoble, who all came down the pike for a nice long visit with Tim. When we talked with him tonight, you could hear the energy in his voice from that experience.
Well, we head back tomorrow and can't wait to get caught up in person.
Tim called in again this evening, courtesy of John's cell phone from the outside patio, where he enjoyed a nice supplement to his hospital diet, which John had brought down from the local Whole Food Market. Couple of bits of info - Tim has a new room mate - a boy closer in age to him, who arrived today. His name is Brendan, and that's about all we know. Tim did lose his window view and is now in room 925 C. Since he is now more mobile, that is no longer as important. In fact, he was in his chair when John arrived and was able to get himself down the elevator and out to the front porch.
In PT he learned that his movement involved three different muscles in his left leg, and worked on that a bit. OT was more strength training for his arms. His shoulder feels much better. He worked a bit more on his computer skills, but still needs some work before he feels real comfortable with it.
Brian's cousin Paul works in Boston and came by to visit on Thursday night and brought a box of Cannoli's from the North End. That delicious treat was balanced by a wonderful fruit basket that arrived courtesy of some good friends from Richmond. Thanks everyone!
Italian pastry and fresh fruit are wonderful, but Tim's big treat today was a large dose of Berkshire hospitality in the form of Bridget Redel (fresh back from Germany), Dr. Conor O'Malley, Blake Davis and Katie Grenoble, who all came down the pike for a nice long visit with Tim. When we talked with him tonight, you could hear the energy in his voice from that experience.
Well, we head back tomorrow and can't wait to get caught up in person.
hi Tim
We're so thrilled at your new big news. I too cried tears of joy for you and for everyone rooting for you both with you and far away. You've got what it takes Tim and we'll be sending you the strength and the love to get through the tough moments. We love you Tim and can't wait to see you again. Love, Regina
Keep on Truckin'
Hi Tim,
I am a friend of Brian's in the tourism industry and have heard a lot about you on various trips we have been on together. I know you are a kind soul from a wonderful family. And you are strong and a fighter. From reading your blog, you are making incredible headway and have confronted your challenge head on. You are amazing. Keep the strength and know that there are people pulling for you that you don't even know. You have your whole life ahead of you and this is just a test of will. Keep your eye on the prize when things aren't going your way. You are in such good hands at Spaulding - but you already know that.
Keep on keepin' on and we'll stay updated through your blog.
Take good care,
Lee
I am a friend of Brian's in the tourism industry and have heard a lot about you on various trips we have been on together. I know you are a kind soul from a wonderful family. And you are strong and a fighter. From reading your blog, you are making incredible headway and have confronted your challenge head on. You are amazing. Keep the strength and know that there are people pulling for you that you don't even know. You have your whole life ahead of you and this is just a test of will. Keep your eye on the prize when things aren't going your way. You are in such good hands at Spaulding - but you already know that.
Keep on keepin' on and we'll stay updated through your blog.
Take good care,
Lee
Best Coffee Eva' !!!!
Hoorah!!! Such fantastic news, Tim!! Crying tears of joy over your recent accomplishment. This is wonderful wonderful wonderful. I can just imagine your parents and Jancy doing a jig in the kitchen when they learned of it. Thank goodness John and Noir were there to spread the word. Keep at it, Tim!! You are doing so well. All love, Aunt Carolann
Thursday, July 26, 2007
Meanwhile, back at the Ranch
Leaving Wednesday was tough for us, but Tim had a pretty good day, and that helped. He was a little sore from Tuesday's work out, and that cut into his PT. He has another OTherapist named Maggie, who will be doing some stretching with Tim each morning to make sure he is ready to go. He tried out a group luncheon to meet some of the other folks on the floor. Unfortunately, it was pretty sparsely attended - but now it will be part of his routine. He got a new wheelchair which handles much better, and now he is angling to attend the Police concert on Sunday at the Garden. Some fresh flowers in a snappy Ford Truck vase are now decorating his room. Grandma and Grandpa came up from the Cape for the afternoon to check in and figure out where they will fit in to the coverage while Amy and I are at home. He slept a lot in the afternoon, but was wide awake in the evening and had some time with Uncle John before settling in with My Cousin Vinnie and saying good bye and good night to mom & dad.
Thursday started out a bit unsettling for us. For some reason, Tim's phone wasn't working properly, so we were out of touch with him the whole day. We did get lots of good news in the form of multiple voice messages and a ton of mail that we'll deliver on Saturday. But all of our concerns were laid to rest when we got a call from Uncle John's cell phone at 6:30 - Tim was outdoors again in his chair and had lots to tell us. Then, the BIG NEWS: Tim felt movement in his left leg this morning while doing some exercises and it seems that he can control it - John confirms that you can see some actual, slight movement on his left thigh. At that moment, there was much shouting and carrying on at One Stockbridge Road. Tim's mood was noticeably better and he in fact, had been able to stay awake all day, in his chair, and then be available to go outside. From 135 miles away, we're being cautiously optimistic and chomping at the bit to get back down the road to sort this latest development out with the doctors and therapists.
Also of significance was his PT session, where he was strapped to a board and stood up, in order to keep his blood pressure and circulation working properly. In OT, he was putting the final touches on readying the voice recognition software for the computer there. I can't wait to see that this weekend. There were a couple of more social activities, and Tim met James and George - his first contacts on the floor . We have met James before, he's very nice and we look forward to meeting George.
It looks like Amy, Jancy and I will head out to Boston on Saturdays and spend time with Tim until Monday afternoon. J & I will head back and Amy will stick around til Wednesday afternoon. G & G will come up on Thursdays, and in addition to his regular evening visits, John will be with Tim after work on Fridays and back on Saturday morning - and so the cycle will continue
Thanks again to all who are offering prayer, thoughts, good intentions, best wishes, white energy and more - they are supporting us and keeping Tim company when he's alone. We have also lerned that Tim will be getting a few more VIP visitors tomorrow. "Things" really seem to be coming together. So, we'll go to bed tonight and sleep soundly!
Thursday started out a bit unsettling for us. For some reason, Tim's phone wasn't working properly, so we were out of touch with him the whole day. We did get lots of good news in the form of multiple voice messages and a ton of mail that we'll deliver on Saturday. But all of our concerns were laid to rest when we got a call from Uncle John's cell phone at 6:30 - Tim was outdoors again in his chair and had lots to tell us. Then, the BIG NEWS: Tim felt movement in his left leg this morning while doing some exercises and it seems that he can control it - John confirms that you can see some actual, slight movement on his left thigh. At that moment, there was much shouting and carrying on at One Stockbridge Road. Tim's mood was noticeably better and he in fact, had been able to stay awake all day, in his chair, and then be available to go outside. From 135 miles away, we're being cautiously optimistic and chomping at the bit to get back down the road to sort this latest development out with the doctors and therapists.
Also of significance was his PT session, where he was strapped to a board and stood up, in order to keep his blood pressure and circulation working properly. In OT, he was putting the final touches on readying the voice recognition software for the computer there. I can't wait to see that this weekend. There were a couple of more social activities, and Tim met James and George - his first contacts on the floor . We have met James before, he's very nice and we look forward to meeting George.
It looks like Amy, Jancy and I will head out to Boston on Saturdays and spend time with Tim until Monday afternoon. J & I will head back and Amy will stick around til Wednesday afternoon. G & G will come up on Thursdays, and in addition to his regular evening visits, John will be with Tim after work on Fridays and back on Saturday morning - and so the cycle will continue
Thanks again to all who are offering prayer, thoughts, good intentions, best wishes, white energy and more - they are supporting us and keeping Tim company when he's alone. We have also lerned that Tim will be getting a few more VIP visitors tomorrow. "Things" really seem to be coming together. So, we'll go to bed tonight and sleep soundly!
Hey Tim,
The invitation to this blog got trapped in my anti-spam folder! Glad I found it today! Wow, I'm reading and catching up on the reports of your progress and I'm so impressed! You're working your tail off, aren't you!! You must sleep well at night! Hope it's air conditioned :)
Sitting up on a mat? Riding , excuse me, driving yourself around outside in the motorized unit one of the first days there? All the self care stuff your Dad listed..... I am so happy to hear of these achievments. They are such good signs! Can you see me smiling?! You just keep making the most of all they've got to offer.....you're doing it!! Make sure they give you a break once in a while though, eh.
The word on the street in the big city here is that your folks are home. Hopefully that means your Mom can cook up some good food to bring out to you next trip east. (I heard through the grapevine that's kind of where Spaulding falls short?)
Stay the course, Tim! Keep putting that energy where it matters!
Pat
The invitation to this blog got trapped in my anti-spam folder! Glad I found it today! Wow, I'm reading and catching up on the reports of your progress and I'm so impressed! You're working your tail off, aren't you!! You must sleep well at night! Hope it's air conditioned :)
Sitting up on a mat? Riding , excuse me, driving yourself around outside in the motorized unit one of the first days there? All the self care stuff your Dad listed..... I am so happy to hear of these achievments. They are such good signs! Can you see me smiling?! You just keep making the most of all they've got to offer.....you're doing it!! Make sure they give you a break once in a while though, eh.
The word on the street in the big city here is that your folks are home. Hopefully that means your Mom can cook up some good food to bring out to you next trip east. (I heard through the grapevine that's kind of where Spaulding falls short?)
Stay the course, Tim! Keep putting that energy where it matters!
Pat
On pilgrimages and blogs
Hi Tim
As you know I am just back from France. I should be working and catching up on the time away, but I'd rather spend a morning coffee with you. I mentioned that I did a pilgrimage for you while in France, but I haven't told you anything about it. Our little village in France, named Cotignac, is surrounded by rock cliffs, which for centuries were the hiding place of the persecuted. Along the perimeter of the cliffs runs a track, which has been a powerful destination for pilgrims for many centuries. It is said that the Virgin Mary appeared at Notre Dame, the chapel on the mountain above the village, and when the royal parents could not conveive they visited the site, et voila! Louis XIV was conceived. You might recall that both Congo and I fell pregnant not long after a walk along this trail. It is an incredibly beautiful and peaceful journey with only the sound of a gentle breeze and your own breathing, coupled with the clean dry smells of South of France - fennel, pine, grass and herbs. The trail runs from Notre Dame de Grace which sits at one end of the village, along the top rim of the village 4km to le monastaire de St Joseph, which is in the hills above the village on the opposite side, and then back down 3km to the village. The track is steep with a sandy, rock base - not the easiest surface to walk on, but that just makes it more appropriate: a pilgrimage isn't a stroll. As I laboured on with the mediterranean sun beating down, I thought of you every step of the way, praying for your progress. At this point it gets slightly metaphysical, the idea being that through pure thoughts and pure action completely devoted to you, a positive energy is then passed on to you. The blog works in a similar fashion as it allows all of us to communicate positive reassurance and support to you and then goes full circle as your blogs communicate an incredibly positive and informative message to us all. So... whether it's a centuries old pilgrimage or a high-tech blog, both types of messages come out from the ether as we find quiet moments to think about you and to let you know how very much we care about you. Can't wait for the next installment! All love, Aunt Carolann
As you know I am just back from France. I should be working and catching up on the time away, but I'd rather spend a morning coffee with you. I mentioned that I did a pilgrimage for you while in France, but I haven't told you anything about it. Our little village in France, named Cotignac, is surrounded by rock cliffs, which for centuries were the hiding place of the persecuted. Along the perimeter of the cliffs runs a track, which has been a powerful destination for pilgrims for many centuries. It is said that the Virgin Mary appeared at Notre Dame, the chapel on the mountain above the village, and when the royal parents could not conveive they visited the site, et voila! Louis XIV was conceived. You might recall that both Congo and I fell pregnant not long after a walk along this trail. It is an incredibly beautiful and peaceful journey with only the sound of a gentle breeze and your own breathing, coupled with the clean dry smells of South of France - fennel, pine, grass and herbs. The trail runs from Notre Dame de Grace which sits at one end of the village, along the top rim of the village 4km to le monastaire de St Joseph, which is in the hills above the village on the opposite side, and then back down 3km to the village. The track is steep with a sandy, rock base - not the easiest surface to walk on, but that just makes it more appropriate: a pilgrimage isn't a stroll. As I laboured on with the mediterranean sun beating down, I thought of you every step of the way, praying for your progress. At this point it gets slightly metaphysical, the idea being that through pure thoughts and pure action completely devoted to you, a positive energy is then passed on to you. The blog works in a similar fashion as it allows all of us to communicate positive reassurance and support to you and then goes full circle as your blogs communicate an incredibly positive and informative message to us all. So... whether it's a centuries old pilgrimage or a high-tech blog, both types of messages come out from the ether as we find quiet moments to think about you and to let you know how very much we care about you. Can't wait for the next installment! All love, Aunt Carolann
Wednesday, July 25, 2007
Dear Tim and family (Brian, Amy, Jancy),
I’ve never posted on a blog before and this morning I wrote you a long message that I lost. I had not signed in properly and while trying to do that my message disappeared. I’m trying again, and hope it works this time (a learning experience!).
Because of events going on in Seneca Falls, I’ve been preoccupied and mostly offline for about a week. This morning I went to Tim’s blog and have now read all the entries and comments, bringing me up-to-date with happenings and progress. I am grateful for the communication tools that make it possible for me to be well informed even though I am so far away.
Brian, I am especially grateful for your detailed messages that have helped me visualize Tim’s circumstances—at BMC, the move, and now Spaulding—the visitors, the gifts, the activities, etc. I have a vivid picture in mind of what’s been happening, and that makes me feel more connected.
Tim, the best news of all is your positive attitude. How you are responding to the dramatic and unexpected change in your life is truly remarkable. In adversity, the awesome person you are is shining through. You are a light and inspiration to us all. Surrounded as you are by the love and caring of family and friends, it’s clear that you appreciate this blessing, and in turn your courageous spirit is a blessing.
Next week my Mom and I will be driving to Charlottesville to visit family there, but later in August I plan to come to Boston. (I have a sister who lives in Natick whom I will stay with.) Tim, I am very anxious to visit you. Your Boston harbor view room sounds great, and all the folks at Spaulding whom you are working with in your healing process do, too. In the meanwhile, I am glad to have your mailing address, so that I can communicate that way when I don’t have access to a computer.
I am glad that I came to your blogspot today, a transition time as family members prepare to return to the Berkshires. It will be another challenge for you, another step along the way. You’ve shown that you are up to meeting the challenge life has presented—showing others that they can, too.
Please know that I thinking of you, Tim, with very much love.
Allison
I’ve never posted on a blog before and this morning I wrote you a long message that I lost. I had not signed in properly and while trying to do that my message disappeared. I’m trying again, and hope it works this time (a learning experience!).
Because of events going on in Seneca Falls, I’ve been preoccupied and mostly offline for about a week. This morning I went to Tim’s blog and have now read all the entries and comments, bringing me up-to-date with happenings and progress. I am grateful for the communication tools that make it possible for me to be well informed even though I am so far away.
Brian, I am especially grateful for your detailed messages that have helped me visualize Tim’s circumstances—at BMC, the move, and now Spaulding—the visitors, the gifts, the activities, etc. I have a vivid picture in mind of what’s been happening, and that makes me feel more connected.
Tim, the best news of all is your positive attitude. How you are responding to the dramatic and unexpected change in your life is truly remarkable. In adversity, the awesome person you are is shining through. You are a light and inspiration to us all. Surrounded as you are by the love and caring of family and friends, it’s clear that you appreciate this blessing, and in turn your courageous spirit is a blessing.
Next week my Mom and I will be driving to Charlottesville to visit family there, but later in August I plan to come to Boston. (I have a sister who lives in Natick whom I will stay with.) Tim, I am very anxious to visit you. Your Boston harbor view room sounds great, and all the folks at Spaulding whom you are working with in your healing process do, too. In the meanwhile, I am glad to have your mailing address, so that I can communicate that way when I don’t have access to a computer.
I am glad that I came to your blogspot today, a transition time as family members prepare to return to the Berkshires. It will be another challenge for you, another step along the way. You’ve shown that you are up to meeting the challenge life has presented—showing others that they can, too.
Please know that I thinking of you, Tim, with very much love.
Allison
Tuesday, July 24, 2007
Hi Tim
I've been keeping up with your progress via my West Stockbridge connections and now this blog. Sounds like you are in a great place - I know from my short time in rehab how close and important your therapists become. It's great that you have been able to get right to work, it makes the time go by faster. I'll be checking in from time to time.... maybe even get to Boston to visit, so don't leave without letting me know.
Later
Bob G
I've been keeping up with your progress via my West Stockbridge connections and now this blog. Sounds like you are in a great place - I know from my short time in rehab how close and important your therapists become. It's great that you have been able to get right to work, it makes the time go by faster. I'll be checking in from time to time.... maybe even get to Boston to visit, so don't leave without letting me know.
Later
Bob G
Two for Tuesday
Another beautiful day overlooking the Boston Garden. Yes. The Boston Garden. Tim had a pretty decent day. As I write, he and Amy are winding down watching some sort of intellectual film I'm not familiar with. It's called "Something About Mary" and has apparently won several awards.
Anyway, the day started off pretty well. Dr. O'Connor noted that Tim's coughs are much stronger, indicating that his abs are strengthening. Good news.
I shaved Tim today - two weeks of beard. No blood, but we won't be waiting that long again before the next one. His face feels much better under the brace now.
In PT, Tim worked today on transferring from bed to chair, again requiring a lot of arm strenghth. OT was also about preparing for transfers with some specific arm strength exercises. He also worked on preparing his voice for voice recognition software. Our case manager stopped by and had meetings with both Amy and Tim. The whole therapy team will meet weekly to discuss and evaluate Tim's progress.
Tim received several greetings from friends today, and they were spread out over the course of the day. A bouquet of flowers from a cuz, a letter from a fan in Housatonic, and two packages from West Stockbridge and Deerfield (wow!). He is feeling the love. Thank you!!
Visitors continue to brighten the room - Sam Schrager stopped in for almost a half hour, along with Cathy and Harold after his Northeastern University Orientation. Uncle John came by this evening as well.
Tonight is our last night in town. We'll leave Wednesday after putting Tim to bed and head back to West Stockbridge. Amy and I will then figure out what our routine will be. While we're out of town, Uncle John will stop by daily, and of course we'll call a few times a day for updates. This will be hard, but we are very confident in the staff to look after Tim, and he is comfortable to be on his own now. He'll probably handle it better than us!
Anyway, the day started off pretty well. Dr. O'Connor noted that Tim's coughs are much stronger, indicating that his abs are strengthening. Good news.
I shaved Tim today - two weeks of beard. No blood, but we won't be waiting that long again before the next one. His face feels much better under the brace now.
In PT, Tim worked today on transferring from bed to chair, again requiring a lot of arm strenghth. OT was also about preparing for transfers with some specific arm strength exercises. He also worked on preparing his voice for voice recognition software. Our case manager stopped by and had meetings with both Amy and Tim. The whole therapy team will meet weekly to discuss and evaluate Tim's progress.
Tim received several greetings from friends today, and they were spread out over the course of the day. A bouquet of flowers from a cuz, a letter from a fan in Housatonic, and two packages from West Stockbridge and Deerfield (wow!). He is feeling the love. Thank you!!
Visitors continue to brighten the room - Sam Schrager stopped in for almost a half hour, along with Cathy and Harold after his Northeastern University Orientation. Uncle John came by this evening as well.
Tonight is our last night in town. We'll leave Wednesday after putting Tim to bed and head back to West Stockbridge. Amy and I will then figure out what our routine will be. While we're out of town, Uncle John will stop by daily, and of course we'll call a few times a day for updates. This will be hard, but we are very confident in the staff to look after Tim, and he is comfortable to be on his own now. He'll probably handle it better than us!
Monday, July 23, 2007
The Hard Work Begins
Tim had a bit of a down day on Sunday, he was in bed all day with a fever. The staff kept him cool with damp face cloths and fans, and ran tests to rule out any infections. Fevers are somewhat common due to normal circumstances associated with how the respiratory and circulation systems are affected.
By Monday morning, Tim had a good night sleep and the fever was down. After breakfast, he had a PT session with Kevin that he drove himself to in his chair. This session was about balance. Tim spent the whole hour learning how to sit on a mat and hold himself up. He feels stronger about this then he has earlier. He was able to hold the position for a fairly long time - 10 to 15 minutes. That simple activity was exhausting, and that illustrates what Tim's world is like now.
His OT session was a bit of a preview of things to come, as he was too tired to try anything new. Tomorrow, they will space the sessions out a bit to make sure he's ready to go. But for today, Rachel set him up with some Adaptive Technology tools that will allow him to turn on the TV and Radio and operate a speaker phone. He also got a look at some tools and techniques to wash his face and torso and to brush his teeth. Two weeks ago, I probably would have made some wise ass comment about that, but no longer!
Just after lunch, Kathy and Brianna Davis of West Stockbridge stopped by to visit while they were out at this end of the state. Tim was asleep and wasn't able to see them, but Kathy had worked with us to pick up and deliver our mail, and we were able to share a lot of cards and notes of support from even more of our friends and neighbors. Then, I showed Tim Conor's post and he was a happy guy. Tomorrow we look forward to a visit from Sam Schrager after he finishes he orientation at Northeastern.
After watching one of the Scream movies, Tim is pretty whipped and is heading off to dream land. But before that went there, we discovered that one of his nurses, Kristin, has relatives in Housatonic. Her mom is a Sakowski - she has had dinner at Jacks Grill and loves the Prime Outlets at Lee. So, the Berkshires spirit is carried over to Spaulding, too.
On the parents front - Brian is working his way back into the workplace, exhibiting at a trade show in Boston in the afternoon after spending time with Tim in the morning.
By Monday morning, Tim had a good night sleep and the fever was down. After breakfast, he had a PT session with Kevin that he drove himself to in his chair. This session was about balance. Tim spent the whole hour learning how to sit on a mat and hold himself up. He feels stronger about this then he has earlier. He was able to hold the position for a fairly long time - 10 to 15 minutes. That simple activity was exhausting, and that illustrates what Tim's world is like now.
His OT session was a bit of a preview of things to come, as he was too tired to try anything new. Tomorrow, they will space the sessions out a bit to make sure he's ready to go. But for today, Rachel set him up with some Adaptive Technology tools that will allow him to turn on the TV and Radio and operate a speaker phone. He also got a look at some tools and techniques to wash his face and torso and to brush his teeth. Two weeks ago, I probably would have made some wise ass comment about that, but no longer!
Just after lunch, Kathy and Brianna Davis of West Stockbridge stopped by to visit while they were out at this end of the state. Tim was asleep and wasn't able to see them, but Kathy had worked with us to pick up and deliver our mail, and we were able to share a lot of cards and notes of support from even more of our friends and neighbors. Then, I showed Tim Conor's post and he was a happy guy. Tomorrow we look forward to a visit from Sam Schrager after he finishes he orientation at Northeastern.
After watching one of the Scream movies, Tim is pretty whipped and is heading off to dream land. But before that went there, we discovered that one of his nurses, Kristin, has relatives in Housatonic. Her mom is a Sakowski - she has had dinner at Jacks Grill and loves the Prime Outlets at Lee. So, the Berkshires spirit is carried over to Spaulding, too.
On the parents front - Brian is working his way back into the workplace, exhibiting at a trade show in Boston in the afternoon after spending time with Tim in the morning.
Timmy
Hey guys,
From what I've read it seems Tim is making progress! That is awesome. It's also good to hear, or at least get the vibe, that he is in a comfortable and healthy environment. With good docs, good roomies, and an incredibly family, the energy surrounding Tim will help him and strengthen his rehabilitation. But TIM! there is no pressure in this rehab - however far you go I will be more proud of you than anyone I can think off; I already am! I have the utmost faith in you and all of your strengths, to the point where I truly believe this is simply a bump in the road for you man. You know what you're capable of and you also know the skies the limit. I love you man, keep up the good work and I'll hopefully be down sometime soon.
Conor
From what I've read it seems Tim is making progress! That is awesome. It's also good to hear, or at least get the vibe, that he is in a comfortable and healthy environment. With good docs, good roomies, and an incredibly family, the energy surrounding Tim will help him and strengthen his rehabilitation. But TIM! there is no pressure in this rehab - however far you go I will be more proud of you than anyone I can think off; I already am! I have the utmost faith in you and all of your strengths, to the point where I truly believe this is simply a bump in the road for you man. You know what you're capable of and you also know the skies the limit. I love you man, keep up the good work and I'll hopefully be down sometime soon.
Conor
Saturday, July 21, 2007
36 Hours at Spaulding
Friday was a day of introductions and orientation. Nothing formal, but we met Dr. Kevin O'Connor, the Medical Director of the Spinal Injury section. He had a nice long talk with Tim and we are impressed with his manner. During the course of the day, we also met and talked with his Physical Therapist (PT) and Occupational Therapist (OT), a resident and several nurses. These folks are entirely devoted to injuries such as the one Tim has suffered and all have a great, "can do" attitude. Very upbeat.
A couple of hours after we checked in, Tim's room mate arrived. His name is Brian, he's 46 and also very nice. He has been paralyzed for 21 years, and is in to rehabilitate his arm, which has been weakened due to an infection. He is also a very positive person, and pleasant to talk to. I think he'll be a good room mate for Tim.
Another man named Jerry stopped by to say hello. He is a volunteer, also a paraplegic and share some inspirational stories with Tim about leading an active life including driving and playing golf.
Grandma and Grandpa stayed with us til around 5:00 and then went home through the parking lot known as the Southeast Expressway.
Saturday was a big day for Tim. After devouring a big breakfast, Tim had lengthy PT and OT sessions which left him pretty worn out. He got some tools to help him eat on his own and do some other "ADL's" (Acts of Daily Living). Most importantly, Tim is NOW MOBILE! He has a new motorized wheel chair, which he can drive around with a joystick control. As you might guess, he had no problem mastering that control and after a few spins around the 9th floor, we headed down to the outdoor park area, along with Uncle John and JP who were visiting with Noir. Tim handled the various ramps and curb cuts and we had a delightful hour or so in the sunshine (his first since the day of the accident) and enjoying the view of the Charles River and the very cool and distinctive Leonard P. Zakim Bunker Hill Memorial Bridge - http://www.massturnpike.com/bigdig/background/crb.html .
Tim was pretty tired out after all that. We went up to his room an hung out for a while until Tim fell asleep.
A couple of hours after we checked in, Tim's room mate arrived. His name is Brian, he's 46 and also very nice. He has been paralyzed for 21 years, and is in to rehabilitate his arm, which has been weakened due to an infection. He is also a very positive person, and pleasant to talk to. I think he'll be a good room mate for Tim.
Another man named Jerry stopped by to say hello. He is a volunteer, also a paraplegic and share some inspirational stories with Tim about leading an active life including driving and playing golf.
Grandma and Grandpa stayed with us til around 5:00 and then went home through the parking lot known as the Southeast Expressway.
Saturday was a big day for Tim. After devouring a big breakfast, Tim had lengthy PT and OT sessions which left him pretty worn out. He got some tools to help him eat on his own and do some other "ADL's" (Acts of Daily Living). Most importantly, Tim is NOW MOBILE! He has a new motorized wheel chair, which he can drive around with a joystick control. As you might guess, he had no problem mastering that control and after a few spins around the 9th floor, we headed down to the outdoor park area, along with Uncle John and JP who were visiting with Noir. Tim handled the various ramps and curb cuts and we had a delightful hour or so in the sunshine (his first since the day of the accident) and enjoying the view of the Charles River and the very cool and distinctive Leonard P. Zakim Bunker Hill Memorial Bridge - http://www.massturnpike.com/bigdig/background/crb.html .
Tim was pretty tired out after all that. We went up to his room an hung out for a while until Tim fell asleep.
Old dog NEW Tricks
He Tim I'm trying to disprove the idea that you can't teach an old dog a new trick -- never done this before - Hope it works - It may be the easiest way I have to give you a hard time.
Well 3 days since I started tying to get a message out to you and I think I got it.
Let the herassing begin. If this doesn't work this time I'm going to go get a couple of tin cans and a real big ball of string.
Lets see if this gets through - then!!!!!
Steve Foose
I'm in trouble - no spell checker!!!
Well 3 days since I started tying to get a message out to you and I think I got it.
Let the herassing begin. If this doesn't work this time I'm going to go get a couple of tin cans and a real big ball of string.
Lets see if this gets through - then!!!!!
Steve Foose
I'm in trouble - no spell checker!!!
Hi Tim (and Family)!!
Hope you've arrived in Boston and are somewhat settled in. I had hoped to see you before you left BMC but obviously that didn't happen. I'm glad to hear that you are keeping a positive attitude....that will help you just as much if not more than any medical care you can receive.
So what do you think of Spaulding? I've heard incredible things about their program..you're very fortunate to be able to go there. I took care of a 23 yr. old man at BMC while I was in nursing school who had been mentally and physically disabled due to a motor vehicle accident. Although he would have tremendously benefitted from going to Spaulding, his insurance company refused to pay for it. Hard to believe isn't it?
I wish you all the best while you're there and when you get back home. If there is anything I can do don't hesitate to ask. For now, please know that you are in our DAILY thoughts as you face a lot of hard work and process emotions that can be extremely difficult to handle. Hang in there, though. Keep in touch.
-Joanne
Hope you've arrived in Boston and are somewhat settled in. I had hoped to see you before you left BMC but obviously that didn't happen. I'm glad to hear that you are keeping a positive attitude....that will help you just as much if not more than any medical care you can receive.
So what do you think of Spaulding? I've heard incredible things about their program..you're very fortunate to be able to go there. I took care of a 23 yr. old man at BMC while I was in nursing school who had been mentally and physically disabled due to a motor vehicle accident. Although he would have tremendously benefitted from going to Spaulding, his insurance company refused to pay for it. Hard to believe isn't it?
I wish you all the best while you're there and when you get back home. If there is anything I can do don't hesitate to ask. For now, please know that you are in our DAILY thoughts as you face a lot of hard work and process emotions that can be extremely difficult to handle. Hang in there, though. Keep in touch.
-Joanne
Aloha
Hey Tim,
I miss you already! It was amazing to visit you and see your smile, especially after you cracked a wry joke or two. I guess I'll just have to get myself to Boston to visit!
I have been so impressed by you, your stamina, your wit, your understanding, insight and compassion. I have complete faith that you will get through this in flying colors. You are blessed with an amazing brain and it will serve you well as you face the challenges ahead. Your heart and ability to touch people will also help you and the rest of us as we look to you to show us the way. You have enormous strength of character Tim, and along with your determination and spirit you will be able to face whatever comes your way. Keep up the good work. Know that we are all thinking about you and looking forward to seeing your progress.
much love, Molly
I miss you already! It was amazing to visit you and see your smile, especially after you cracked a wry joke or two. I guess I'll just have to get myself to Boston to visit!
I have been so impressed by you, your stamina, your wit, your understanding, insight and compassion. I have complete faith that you will get through this in flying colors. You are blessed with an amazing brain and it will serve you well as you face the challenges ahead. Your heart and ability to touch people will also help you and the rest of us as we look to you to show us the way. You have enormous strength of character Tim, and along with your determination and spirit you will be able to face whatever comes your way. Keep up the good work. Know that we are all thinking about you and looking forward to seeing your progress.
much love, Molly
Friday, July 20, 2007
The Eagle has landed
Posted by Tim's dad, for now.
We all arrived today (Friday) at around noon after a very smooth ride down the Mass Pike. Thanks to County Ambulance. Grandma and Grandpa came up from the Cape and were waiting to greet us. We got the last parking spot in the lot and checked right in. The facility is obviously state of the art http://www.spauldingrehab.org/ and everyone is nice. Tim has a window side bed with a view of Boston Harbor, including the masts of the USS Constitution. He has his BioLife pendant around his neck warding off bad energy and attracting the good. Joel's mobile has been hung overhead and Katie's & Jordan's poster with all those signatures has been hung (your's too, Shurika). Tim is wearing his Monument football jersey with his teammates signatures (thanks Coach Huggins) and his Audi Cap and UTI logo are hanging on the wall. He's settled in. The only thing missing is a ton of loving aunts and uncles and Conor and Blake (they visited every day at BMC). The Dr. should be by shortly for a physical and we'll start to learn where this is all headed.
We all arrived today (Friday) at around noon after a very smooth ride down the Mass Pike. Thanks to County Ambulance. Grandma and Grandpa came up from the Cape and were waiting to greet us. We got the last parking spot in the lot and checked right in. The facility is obviously state of the art http://www.spauldingrehab.org/ and everyone is nice. Tim has a window side bed with a view of Boston Harbor, including the masts of the USS Constitution. He has his BioLife pendant around his neck warding off bad energy and attracting the good. Joel's mobile has been hung overhead and Katie's & Jordan's poster with all those signatures has been hung (your's too, Shurika). Tim is wearing his Monument football jersey with his teammates signatures (thanks Coach Huggins) and his Audi Cap and UTI logo are hanging on the wall. He's settled in. The only thing missing is a ton of loving aunts and uncles and Conor and Blake (they visited every day at BMC). The Dr. should be by shortly for a physical and we'll start to learn where this is all headed.
It's really hard for me to express how appreciative and moved my family has felt through this whole process. Our Berkshires community has held us up and supported us, sharing news with their friends around the world. We know that prayers have been offered in Oklahoma, New Jersey, Florida, California, France, and my favorite - by a nun at the Vatican. I'm sure there are more out there, and we are strengthened by all of them. Our Boston community is about to kick in, offering help with free parking, hotel rooms, meals and visits. We are in a very fortunate position to deal with a very unfortunate situation
Tim is beginning to woo the staff with his insightful and clear comments. Good things are ahead. More later.
Tim's mailing address
Tim Butterworth
Room 920W
Spaulding Rehabilitation Hospital
125 Nashua Street
Boston (the Hub of the Universe), MA 02114-1198
Easy access via the Green Line,Orange line or Commuter Rail atNorth Station.
Tim is beginning to woo the staff with his insightful and clear comments. Good things are ahead. More later.
Tim's mailing address
Tim Butterworth
Room 920W
Spaulding Rehabilitation Hospital
125 Nashua Street
Boston (the Hub of the Universe), MA 02114-1198
Easy access via the Green Line,Orange line or Commuter Rail atNorth Station.
Thursday, July 19, 2007
From (West) Stockbridge to Boston
Given the steady stream of people that came to see Tim when I was at the hospital on Wednesday (7/18), it’s hard to imagine that there is anyone who has not been through those doors. Despite everything, Tim’s eyes are bright and his complexion healthy; he is clean-shaven, at least as far at the mutton chops go, with a full head of Summertime hair. It’s hard to believe that he has had all that surgery. He ordered up a big hospital dinner – mashed potatoes and all –his humor is there, his smile is broad, and he has not forgotten how to launch a wise-crack to friends or retort to his sister. He is incredibly polite, responsive, and thankful to the caregivers that attend him – not even a hint of a cranky attitude. Equally incredible, Amy, Brian, Jancy look strong and bright and are full of the right kind of energy to take this forward. Who needs sleep anyway?
Brian managed to track down the two woman responsible for pulling Tim out of the water, and one of these came to see Tim and to tell her story. The women already knew Tim as the lifeguard, and were used to seeing him come on his moped each day with all his gear. She reflected on the First Aid class she took years ago at BCC, and the instructor, who seemed a drill sergeant at the time, making her learn to act immediately in response to the situation rather than stopping to question.
All this and more – and then it was dinner time – Katie, Art, Sarah, Nigel and Tessa arrived with a fantastic amount of delicious food – with special packages of favorites for Tim – so much for ordering up that big plate of hospital food.
So as Tim head’s up to Spaulding in Boston (where I live), please let me know if there is anything I can do to accommodate overnights, parking, directions, whatever, I will do my best …Onwards! JSB
Brian managed to track down the two woman responsible for pulling Tim out of the water, and one of these came to see Tim and to tell her story. The women already knew Tim as the lifeguard, and were used to seeing him come on his moped each day with all his gear. She reflected on the First Aid class she took years ago at BCC, and the instructor, who seemed a drill sergeant at the time, making her learn to act immediately in response to the situation rather than stopping to question.
All this and more – and then it was dinner time – Katie, Art, Sarah, Nigel and Tessa arrived with a fantastic amount of delicious food – with special packages of favorites for Tim – so much for ordering up that big plate of hospital food.
So as Tim head’s up to Spaulding in Boston (where I live), please let me know if there is anything I can do to accommodate overnights, parking, directions, whatever, I will do my best …Onwards! JSB
I figured it out!
Hey guys,
I figured out how to post stuff, i think. I will be sending this to everyone in the next couple days, once i figure out how exactly to do that. But no worries, it'll work. I hope Timmy's feeling good, and I know he's definitely excited about beginning the rehab process, which he will kick ass at. I'm coming in today timmy with jack and possibly jess, and i hope that pendant is treating you well. Alrite buddy, keep going like only Timothy Butterworth knows how. Haha, I'll be in later dude.
Conor
I figured out how to post stuff, i think. I will be sending this to everyone in the next couple days, once i figure out how exactly to do that. But no worries, it'll work. I hope Timmy's feeling good, and I know he's definitely excited about beginning the rehab process, which he will kick ass at. I'm coming in today timmy with jack and possibly jess, and i hope that pendant is treating you well. Alrite buddy, keep going like only Timothy Butterworth knows how. Haha, I'll be in later dude.
Conor
Wednesday, July 18, 2007
Tim's next step
Actually from Brian, Tim's dad. It looks like Tim will be released Friday morning, July 20 and will be heading directly to the Spaulding Rehabilitation Hospital in Boston. This is a top facility for the type of spinal cord injury that Tim has suffered. We are very encouraged.
Tim, Amy, Brian and Jancy are incredibly grateful for the outpouring of love, support, prayer, visits, food and offers of help that have been extended to us from the wonderful Berkshires community and way beyond. It has sustained us.
We've never been bloggers, but let's see what happens. Thank you to Steve Albert for setting up this site for us. We'll try to keep anyone interested in the loop, and hope that this will be another tool to keep Tim in contact with all those who love and support him, now from many miles away. If you are not a gmail user, I will need to send you an invitation. Please send me an email at bbutter101@msn.com and I'll sign you right up!
Blog away!
Tim, Amy, Brian and Jancy are incredibly grateful for the outpouring of love, support, prayer, visits, food and offers of help that have been extended to us from the wonderful Berkshires community and way beyond. It has sustained us.
We've never been bloggers, but let's see what happens. Thank you to Steve Albert for setting up this site for us. We'll try to keep anyone interested in the loop, and hope that this will be another tool to keep Tim in contact with all those who love and support him, now from many miles away. If you are not a gmail user, I will need to send you an invitation. Please send me an email at bbutter101@msn.com and I'll sign you right up!
Blog away!
Tuesday, July 17, 2007
Welcome Message
Welcome to Tim's blog - the place to read updates on me and the place to post updates about you.
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